I finished up week two and am on my third and final week of 1/4 of a 250 pill M-W-F. Thus far I’ve noticed:
My tinitus is not as bad and I have to actually sit and think about whether or not I have any. I do still have some however, not nearly like it was.
I defiantly get tired a few hours after taking, so next week I may switch to nights so that I can sleep through the tiredness.
I have always been a car sleeper and we drove to Florida from WI and I was awake both full days without taking a nap. This has never happened so that alone is huge. Even after a full day of walking around Disney, I can come back to the camper and make dinner and do all of the dishes prior to resting. Again, another huge change.
I feel more motivated and my thinking is very clear. My brain fog and name loss is getting increasingly better.
I find that I have more issues if I do not drink enough water during the day or if I miss my supplements in a morning. When I say issues, I mean that I notice I’m a little off.
I am looking forward to seeing what happens next week when I take it every day. I am praying that they pharmaceutical company that makes it can keep up with the demand and I read recently on a post on FB that there is shortage and the expect it will be February 2020 before they are back up to speed with the demand.
Guess we will see. Have a wonderful week everyone. I’ll touch base after next week when I have had a full week of meds each day.
Well friends, I am beginning week two. The first week went well, no issues other than slightly more tired. I literally have been falling asleep on the lounger at night, which is not something I am prone to do. So after one week:
A bit more tired.
Tinitus as of today is not as bad as it has been.
Slight dizziness within one hour of taking.
Shockingly my hot flashes (which are due to hormones not Lyme) are actually not quite as bad.
I kind of feel as though my brain fog is slowly lifting. Not as much pressure. I have had a few more minor headaches.
Again, I am:
Taking a 250 pill, cut into quarters, taking 1 quarter tab M-W-F for three weeks.
Vegan and GF, eating plant based.
Have removed all caffeine from my diet.
Removed all products containing any alcohol carrier and all vinegars or fermented foods.
Watching carefully all supplements and making sure I take them. Especially vitamin C, taurine and glutathione. (Especially glutathione for my MTHFR, a genetic disorder which I got from both of my parents.)
Sitting in the sauna at least 3x a week.
Detox Detox Detox….activated charcoal, Cholestrymine, lemon water and my own herbal fresh brewed tea to detox my kidney and liver.
I am hoping that I will be able to notice more improvements after this week. I would especially love to have my ankle not be so stiff and painful to walk.
Picture of my flavored olive oils. Infused with limes, oranges, mushrooms and sage, dill and a butter flavor.
Day One
My two weeks of detoxing and preparing for the Disulfiram journey has ended and this morning I took my first pill. The dosage I have been prescribed is 250 mg. I am starting at a 1/4 of a pill, M-W-F for 3-weeks. Yes, I am starting out slowly. I’ve dealt with this disease for over 36 years, I can handle 1 more year, if that’s what it takes. What I thought was interesting was discussing this drug with the pharmacist. She simply said avoid alcohol. She didn’t clarify to the extent that I have researched. I think this is a warning to all….make sure you do your homework and make sure you are doing your own due diligence. Although the pharmacist should have also mentioned caffeine, vinegars, alcohol carrier, she did not. I brought them up to her and after a few moments she then acknowledged and confirmed what I was telling her. Take this as a warning, they will not tell you everything and you need to make sure you are taking precautions for yourself.
Last weekend we went to Chicago for the weekend and although I prepped for the meals out, I actually used very little of what I prepped.
Home brewed detox tea in smaller capped bottles one for each day. The two spray bottles held my flavored oils for spritzer on salad since I cannot have any dressings and the smaller bottles were selective herbs and pink Himalayan sea salt.
I was able to go through the menus and make up what I could have, telling the waitstaff what I could and could not have and the chefs did an amazing job.
For breakfast the first morning, we ate at Beatrix, I was able to have a coconut milk chia pudding with banana, toasted coconut, puffed rice and a diced up peach. It quite delicious especially with the mint on the top.
Coconut milk chia pudding with banana, puffed rice, toasted coconut and diced peaches.
For dinner, we went to Tavern on Rush and had a wonderful selection on the menu for everyone. I was able to order a baked potato , a side of grilled vegetables and a side of olive oil with some herbs. I basically at the grilled veggies with the potato with the Olive oil herbs they gave me. It was quite delicious.
Baked Potato with grilled vegetables. Asparagus, red and green peppers, zucchini,and onion with a nice lemon on top.
On the last morning the first place we wanted to dine was closed so we opted for option 2 and went to Hub 51 where the menu choices were a little more challenging. What do you eat when even the potatoes have milk and butter in them? I mean, telling them you are a GF Vegan that also cannot have anything with alcohol and vinegar is not easy. What they came up with however was fabulous.
Onion, red peppers, mushrooms sautéed and put into a corn tortilla with a side of avacado, salsa, rice and black beans. Wow! It was wonderful.
We had a great time, and going into today I felt more comfortable on this journey. I am prayerful that I have prepped and given myself full disclosure on what it’s going to take and how to protect myself from falling down. We will see.
I’m on my second week of prep prior to beginning my journey with Disulfiram. No coffee, no tea other than the raw herbs I steep and boil, no vinegar or alcohol in anything.
I turned in my prescription the other day. The pharmacy techs are always so nice and cheerful, well, most of them are. That day was no different. They chit chatted away as I picked up a previously ordered scripts and when I handed them the new one for Disulfiram the tech that took it, after a long pause of studying it, stared at me with a face of disbelief. It was as if she thought she had finally put all the pieces together. She thinks I’m an alcoholic. My kids and husband think I should have explained myself, however, the pharmacy does not need to know why. My daughter said that she thinks the tech was finally able to understand why I’m always happy. hahahaha. Nice!
As I roamed the isles looking for a toothpaste, I was astounded to find that many have alcohol in them. I looked through all of the non-fluoridated natural toothpastes and could only find one that did not. The day prior to that, I was putting plain spices from the spice cupboard on my salad with some olive oil and I pulled one out that was for veggies. It was a veggie blend. I almost just shook it on without looking and then I decided to just look at the ingredients, only to find vinegar. Yes! They had dehydrated the spices and they vinegar on them. When shopping at Costco, we looked at a salsa and again vinegar. I am used to reading labels so this is not hard, and I know what likely will have vinegar, it’s the little things that I didn’t expect it to be in that has me even more cautious.
Last night we went out and I ordered water. Since I don’t usually drink soda, but I cannot drink coffee, alcohol or tea, I thought I’d try a Sprecher soda, in a bottle. A bottle won’t have the HFCS in it and I know they make it with local raw honey. Thank goodness I haven’t started the DSF yet. Believe it or not it had two extracts in it. Yucca and Vanilla. Well extracts have alcohol carriers. I would be sick if I had already started it, since I didn’t realize it until after I drank some of it. This makes me even more cautious that I need to be sure I am prepared to go out to eat. Taking even more caution with what ingredients are being used.
Today I am prepping to head to Chicago this weekend to meet up with some friends and for a meeting. I will provide pictures of what I took with me to make sure I was being safe with my meal choices.
